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Saturday, November 16, 2024

Teen with lengthy COVID, power diseases turns round her life with service canine : NPR


Lilla Lanivich, 13, and her service dog, Lopez, outside their family’s home in Rochester Hills, Mich. This year’s middle school winner of the NPR Student Podcast Challenge tells how her golden retriever, Lopez, helped restore her independence.

Lilla Lanivich, 13, and her service canine, Lopez, outdoors their household’s residence in Rochester Hills, Mich. This yr’s center college winner of the NPR Pupil Podcast Problem tells how her golden retriever, Lopez, helped restore her independence.

Emily Elconin for NPR


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Emily Elconin for NPR

Lilla Lanivich and her service canine, Lopez, do all the things collectively. Whereas Lilla works, paints, sleeps, and learns, Lopez sits quietly and attentively at her toes.

Her rainbow-dyed hair and colourful nails match his rainbow-dyed tail and cream-colored fur.

“I do rainbow make-up, I do rainbow outfits, I really like colour,” Lilla says. “I feel that it makes me capable of present my character just a little bit.”

Lilla talks about how Lopez has helped her cope with a number of power diseases in her podcast Lopez the Rainbow Tailed Service Canine, this yr’s Grand Prize winner for center college in NPR’s Pupil Podcast Problem.

Our judges praised her story for its open and sincere portrayal of a teenager dealing with the challenges of debilitating sickness and ache.

“Whereas Lilia’s friends are beginning to experiment with new types of independence and privateness, she is having to forgo a variety of that,” says Jonaki Mehta, one in every of our contest judges this yr and a producer on NPR’s All Issues Thought of. “And I liked how she confirmed that Lopez helps her regain a few of that independence again and a few of that privateness again.

Lanivich and Lopez both sport rainbow-dyed hair. “I do rainbow makeup, I do rainbow outfits, I love color,” she says.

Lanivich and Lopez each sport rainbow-dyed hair. “I do rainbow make-up, I do rainbow outfits, I really like colour,” she says.

Emily Elconin for NPR


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Emily Elconin for NPR

The Pupil Podcast Problem, now in its sixth yr, has concerned greater than 90,000 college students from all 50 states, Puerto Rico and the District of Columbia. Lilla’s podcast, together with our highschool Grand Prize winner, to be introduced in September, was chosen from almost 2,000 entries from 45 states.

“That summer time, that at some point modified all the things”

In her podcast, Lilla describes a time when Lopez saved her from falling throughout one in every of her non-epileptic seizures:

“One time, I used to be standing within the kitchen about to place away groceries. Lopez pawed me and I jumped on the sofa. Earlier than I knew it, I used to be waking up after passing out.”

Lilla, a 13-year-old who lives in Rochester Hills, Mich., north of Detroit, has been recognized with POTS, PANDAS, lyme illness, a connective tissue dysfunction, and lengthy COVID.

“Lilla’s been sick since she was born,” says her mother, Margaret Lanivich, who has been managing her daughter’s well being for Lilla’s entire life. “It simply looks like each time that one factor would get higher, we’d simply get swamped with one other bunch of stuff after which must sort of type by means of that.”

Lopez went through two years of training to be able to detect Lilla’s seizures before they happen.

Lopez went by means of two years of coaching to have the ability to detect Lilla’s seizures earlier than they occur.

Emily Elconin for NPR


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Emily Elconin for NPR

Lilla had surgical procedure when she was 7 to attempt to assist, however different points saved popping up. When she was 9, Lilla remembers, she awoke at some point and will not stroll. The medical doctors weren’t capable of inform her why.

Her dad, Iain Lanivich, remembers it vividly. “I’ve video of her actually the day earlier than,” he says. “Lilla used to play sports activities … used to have interaction in a variety of various things. After which rapidly it was simply gone.”

She misplaced mobility for 55 days, and suffered one other episode that lasted 70 days a number of months later.

Lilla’s been homeschooled since 2019, utilizing a wheelchair more often than not, and her mother and father monitored her consistently — she says she could not even brush her enamel by herself. She had misplaced her independence in a single day, and was quickly dropping social shops.

Her mother and father turned to on-line assist teams, in search of something that would assist their daughter regain some normalcy. One reply got here up over and over: Get a service canine.

Lopez joins the Lanivich household

Lilla tells how, as soon as they chose a pet, they needed to discover a coach and bear virtually two years of intensive coaching with Lopez. The primary yr of his life was simply fundamentals, then they graduated to extra superior issues, like seizure detection.

The Lanivich Family: Drexel Lanivich, 12, mom Margaret, Lopez, Lilla and dad Ian Lanivich in Rochester, Mich.

The Lanivich Household: Drexel Lanivich, 12, mother Margaret, Lopez, Lilla and pa Ian Lanivich in Rochester, Mich.

Emily Elconin for NPR


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Emily Elconin for NPR

Lilla describes inserting a sterile gauze pad in her mouth simply earlier than and through her seizures, then the coach would introduce them to Lopez.

Now, Lopez can scent when a seizure is coming and, when that occurs, he paws her, telling her to go sit down whereas he will get assist.

“As a child and nonetheless to this present day, Lopez loves resting his head on my wheelchair,” Lilla says in her podcast. “He is very goofy, snuggly and playful. We grew to become greatest mates so shortly.”

Having Lopez in the home has modified, not simply Lilla’s life, however her mother and father’ as nicely. “It is all the things,” says Lilla’s mother, Margaret. “It is the entire motive … why I needed to attempt the service canine factor to start with: So she would have freedom and she or he may have privateness.”

Not on daily basis is identical, however with the assistance of Lopez, Lilla says that this summer time, she’s studying to understand the intense spots each time they occur, and provides she’s feeling nice.

“I have been capable of do issues the previous few weeks that I by no means would’ve thought I might be capable to do once more,” she says. “Like stroll the Detroit Zoo! I used to be in a position to try this which remains to be loopy to me.”

And this fall, she’s again at school for the primary time in 5 years, one other factor she will be able to’t fairly imagine but: “The whole lot simply appeared so out of attain for me. However I even have hope now, which is unimaginable and loopy.”

She says she’s taking it day-to-day. And Lopez can be proper by her facet, each step of the way in which.

Edited by Steve Drummond
Audio story produced by Janet Woojeong Lee
Visible design and improvement by LA Johnson

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